Find Support

You’re Not Alone 

If you have been diagnosed with an MPN, it’s important to know that you’re not alone. In addition to your physician and family members, you have the support of a large and growing MPN community that understands the challenges you face.

The MPN Research Foundation is proud to play a vital role in the MPN community. We’re committed to working alongside researchers and physicians to provide comprehensive support for MPN patients and their families, offering the advocacy, education and resources you need to find hope for a better tomorrow.

If there are no existing support groups that meet your needs in your community, you may consider starting your own. Starting a support group for people who have been directly affected by ET, PV or MF takes a great deal of commitment and dedication but is a highly rewarding activity. It gives you an opportunity to connect with others who share similar experiences. If you have any questions about starting your own MPN patient support group, please contact Lexi Moore and lmoore@mpnrf.org and click the link below to view MPN Research Foundation's starting an MPN patient support group guide to learn more.

How to Start an MPN Patient Support Group

 

Join online conversations on living with MF, ET & PV.

Elizabeth

Essential Thrombocythemia

Learn how Elizabeth and her daughter came up with some creative MPN research fundraising ideas! Read her story

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