About
MPN Research Foundation

Partner. Advocate. Friend. At the MPN Research Foundation, we’re committed to standing with you in the fight against polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.

About Us

Providing education and resources for a better today. Investing in research for a better tomorrow.

MPNRF By the Numbers

  • $MM
    • MPN Research Funded
    • Researchers Supported
    • Projects Funded

Recent News

MPNRF visits the FDA

MPN News | September 18, 2017

The FDA reached out to 3 MPN patient advocate groups including the MPN Research Foundation, had discussions about the concerns of MPN patients, and asked them to send representatives to an FDA Mini Symposium:

Read More

September is Blood Cancer Awareness Month

MPN News | August 30, 2017

MPNRF has a few ways for you to take action

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What does the approval of Kymriah mean for MPN?

MPN News | September 1, 2017

MPNRF asks immunotherapy expert Saar Gill about what we can expect

Read More
More News

What is Primary Myleofibrosis (MF)?

Primary Myleofibrosis (MF)

PMF is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells.

Learn about PMF

What is Essential Thrombocythemia (ET)?

Essential Thrombocythemia (ET)

Most commonly diagnosed in women over the age of 50, ET is associated with a proliferation of platelet precursors in the bone marrow and complications frequently include blood clotting and/or bleeding.

Learn about ET

What is Polycythemia Vera (PV)?

Polycythemia Vera (PV)

The disease is most common in men over the age of 60, but anyone can develop PV. PV patients typically experience an elevated red blood cell count, an elevated platelet count and an enlarged spleen, especially over time.

Learn about PV

Patient Stories

See All Patient Stories

Tamykah Myelofibrosis (MF)

Tamykah Pitts is sharing her journey with Myelofibrosis. She describes her diagnosis and her pregnancy as an MPN patient..

Age: 33 Meet Tamykah

Kenny Polycythemia Vera (PV)

Completing a 200-mile bike ride in one day may not be for everyone. The training would be hard on healthy people.

Age: N/A Meet Kenny

Elizabeth Essential Thromobocythemia (ET)

Elizabeth Gross and her daughter Page are getting crafty to raise funds for MPN research and awareness.

Age: 40 Meet Elizabeth

Frances Essential Thromobocythemia (ET)

After being misdiagnosed numerous times, finally, Frances was diagnosed with ET at the age of 50. Read his story here.

Age: 50 Meet Frances

Lorraine Essential Thromobocythemia (ET)

I worked for a hospital as Executive Assistant to the CFO from 1990 - 1997. We had to have annual exams and in 1995 they noticed my platelets were high -- around 450,000.

Age: 51 Meet Lorraine

With an orphan disease, the support can be hard to find. I found that support at the MPN Research Foundation.

Juan Alderete, PV 06

Ready to do more?

Julie and her family joined team MPN and created HikeMF to join the fight against MPNs.

Get Involved Now.

Stay Connected

With your generous gift, you can change a MPN patient's prognosis.

By supporting MPN Research Foundation, you're also supporting countless doctors and researchers around the world who are working to find a cure for these rare diseases.

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Join Cancer Connect

A safe space to chat with others living with PV, ET and MF

Start here!

MPN Community Calendar

HIKEMF
Sat, May 21st, 10am

Attend the Event

MPN Information kit

Be the first to know about what's going on in the PV, ET, and MF community.

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