About
MPN Research Foundation

Partner. Advocate. Friend. At the MPN Research Foundation, we’re committed to standing with you in the fight against polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.

About Us

Providing education and resources for a better today. Investing in research for a better tomorrow.

MPNRF By the Numbers

  • $MM
    • MPN Research Funded
    • Researchers Supported
    • Projects Funded

Recent News

New Trial Recruiting Primary, Post-PV, and Post-ET Myelofibrosis Patients

MPN News | 10/15/19

CTI Biopharma is recruiting patients for the PACIFCA trial, a randomized phase 3 study evaluating PACRITINIB in patients with MF.

Read More

The Fall 2019 Newsletter is Here

MPN News | 10/3/19

Your copy of the Fall 2019 Newsletter from the MPN Research Foundation is now available.

Read More

Pegylated Interferon Leads to High Response Rates in ET & PV After Hydroxyurea

MPN News | 10/1/19

ASH Clinical News reports on the results of an open-label, phase II clinical trial published in Blood.

Read More
More News

What is Primary Myleofibrosis (MF)?

Primary Myleofibrosis (MF)

PMF is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells.

Learn about PMF

What is Essential Thrombocythemia (ET)?

Essential Thrombocythemia (ET)

Most commonly diagnosed in women over the age of 50, ET is associated with a proliferation of platelet precursors in the bone marrow and complications frequently include blood clotting and/or bleeding.

Learn about ET

What is Polycythemia Vera (PV)?

Polycythemia Vera (PV)

The disease is most common in men over the age of 60, but anyone can develop PV. PV patients typically experience an elevated red blood cell count, an elevated platelet count and an enlarged spleen, especially over time.

Learn about PV

Patient Stories

See All Patient Stories

Darlene Young Myelofibrosis (MF)

Meet Darlene Young, MF Patient from Coulterville, CA

Age: 71 Meet Darlene Young

Debra Milner Essential Thromobocythemia (ET)

Meet Debra Milner, MDS Patient from Macclenny, FL

Age: 64 Meet Debra Milner

Tom Brennan Myelofibrosis (MF)

Meet Tom Brennan, Vietnam Veteran and Primary Myelofibrosis Patient

Age: 72 Meet Tom Brennan

Heidi Cascarano Polycythemia Vera (PV)

Meet PV patient, Heidi Cascarano from Mundelein, IL

Age: 51 Meet Heidi Cascarano

Diane Hilton Essential Thromobocythemia (ET)

Meet MPN patient Diane Hilton and read about her 31-year journey with Interferon.

Meet Diane Hilton

Ryan Tellini's Journey with Interferon Myelofibrosis (MF)

Learn about MF patient Ryan Tellini and his journey with Interferon.

Meet Ryan Tellini's Journey with Interferon

With an orphan disease, the support can be hard to find. I found that support at the MPN Research Foundation.

Juan Alderete, PV 06

Ready to do more?

Julie and her family joined team MPN and created HikeMF to join the fight against MPNs.

Get Involved Now.

Stay Connected

With your generous gift, you can change a MPN patient's prognosis.

By supporting MPN Research Foundation, you're also supporting countless doctors and researchers around the world who are working to find a cure for these rare diseases.

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Join Cancer Connect

A safe space to chat with others living with PV, ET and MF

Start here!

MPN Community Calendar

HIKEMF
Sat, May 21st, 10am

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MPN Information kit

Be the first to know about what's going on in the PV, ET, and MF community.

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