About
MPN Research Foundation

Partner. Advocate. Friend. At the MPN Research Foundation, we’re committed to standing with you in the fight against polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.

About Us

Providing education and resources for a better today. Investing in research for a better tomorrow.

MPNRF By the Numbers

  • $MM
    • MPN Research Funded
    • Researchers Supported
    • Projects Funded

Recent News

MPN Highlights from ASH 2018

MPN News | 12/5/18

Each year the American Society of Hematology (ASH) hosts their annual convention, where researchers, doctors, and organizations such as the MPN Research Foundation gather to discuss the ever-changing world of blood disorders and learn about the progress of research.

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MPNRF Founder Bob Rosen Honored as MPN Hero

MPN News | 12/1/18

The MPN Heroes Celebration Event held annually at ASH is an opportunity to recognize the individuals and organizations who work hard on behalf of the MPN community and make a difference in the lives of patients living with PV, ET, and MF. Each year at this event, recipients of the MPN Heroes Recognition Program are honored based on those actions and traits that define them as heroes. This year, on November 30, 2018, the founder of the MPN Research Foundation, Bob Rosen, was honored as one of those heroes.

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MPNRF Funded Abstracts to be Presented at ASH

MPN News | 11/19/18

With your support, we have funded research that has resulted in gains in our understanding of Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis. The publications linked below are funded by MPNRF and will be presented at the American Society of Hematology annual meeting in San Diego this December.

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More News

What is Primary Myleofibrosis (MF)?

Primary Myleofibrosis (MF)

PMF is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells.

Learn about PMF

What is Essential Thrombocythemia (ET)?

Essential Thrombocythemia (ET)

Most commonly diagnosed in women over the age of 50, ET is associated with a proliferation of platelet precursors in the bone marrow and complications frequently include blood clotting and/or bleeding.

Learn about ET

What is Polycythemia Vera (PV)?

Polycythemia Vera (PV)

The disease is most common in men over the age of 60, but anyone can develop PV. PV patients typically experience an elevated red blood cell count, an elevated platelet count and an enlarged spleen, especially over time.

Learn about PV

Patient Stories

See All Patient Stories

Simran Bhardwaj Essential Thromobocythemia (ET)

Meet 16 Year Old ET Patient, Simran Bhardwaj

Age: 16 Meet Simran Bhardwaj

Ruth Gunson Essential Thromobocythemia (ET)

Perseverance, Grace, and Laughter: The story of Ruth and Ina

Meet Ruth Gunson

Jedi Polycythemia Vera (PV)

Meet Jedi, a 10-year-old Polycythemia Vera Patient from Texas

Age: 10 Meet Jedi

Ryan Tellini Myelofibrosis (MF)

Meet Ryan Tellini, MF patient of Rhodes, Australia

Age: 36 Meet Ryan Tellini

Cliff Reyda Myelofibrosis (MF)

Click here to read about Cliff and his MPN diagnosis 26 years ago.

Meet Cliff Reyda

With an orphan disease, the support can be hard to find. I found that support at the MPN Research Foundation.

Juan Alderete, PV 06

Ready to do more?

Julie and her family joined team MPN and created HikeMF to join the fight against MPNs.

Get Involved Now.

Stay Connected

With your generous gift, you can change a MPN patient's prognosis.

By supporting MPN Research Foundation, you're also supporting countless doctors and researchers around the world who are working to find a cure for these rare diseases.

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Join Cancer Connect

A safe space to chat with others living with PV, ET and MF

Start here!

MPN Community Calendar

HIKEMF
Sat, May 21st, 10am

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MPN Information kit

Be the first to know about what's going on in the PV, ET, and MF community.

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