MPN Research Foundation

Partner. Advocate. Friend. At the MPN Research Foundation, we’re committed to standing with you in the fight against polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.

About Us

Providing education and resources for a better today. Investing in research for a better tomorrow.

MPNRF By the Numbers

  • $MM
    • MPN Research Funded
    • Researchers Supported
    • Projects Funded

Recent News

What Is This Rare Blood Cancer That Can Cause the Blood to Thicken?

Today on the CBS program, “The Doctors,” Dr. Travis sits down with Matt, a polycythemia vera patient, and his physical Dr. Ellen Ritchie.

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U.S. FDA Grants Priority Review for Fedratinib - New Drug Application in Myelofibrosis

MPN News | 3/5/19

In a press release published today, Celgene Corporation announced that the U.S. Food and Drug Administration (FDA) has granted a Priority Review for Fedratinib.

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It's Rare Disease day AND a MATCH day!

MPN News | 2/28/19

The MPN Research Foundation is doing our part to advocate for the MPN patient population. The needs of patients are first and foremost in our minds when we choose what researchers to support, have conversations with the FDA, and raise awareness about these rare blood cancers.

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More News

What is Primary Myleofibrosis (MF)?

Primary Myleofibrosis (MF)

PMF is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells.

Learn about PMF

What is Essential Thrombocythemia (ET)?

Essential Thrombocythemia (ET)

Most commonly diagnosed in women over the age of 50, ET is associated with a proliferation of platelet precursors in the bone marrow and complications frequently include blood clotting and/or bleeding.

Learn about ET

What is Polycythemia Vera (PV)?

Polycythemia Vera (PV)

The disease is most common in men over the age of 60, but anyone can develop PV. PV patients typically experience an elevated red blood cell count, an elevated platelet count and an enlarged spleen, especially over time.

Learn about PV

Patient Stories

See All Patient Stories

Jessica Harshbarger Essential Thromobocythemia (ET)

Meet ET patient, Jessica Harshbarger from Chicago, IL

Age: 42 Meet Jessica Harshbarger

Jen Hawkins Essential Thromobocythemia (ET)

Meet ET patient, Jen Hawkins from Tri-Cities, Washington

Age: 31 Meet Jen Hawkins

Karolyn Reder Myelofibrosis (MF)

Meet MF patient, Karolyn Reder of Bay City, Michigan

Age: 36 Meet Karolyn Reder

Simran Bhardwaj Essential Thromobocythemia (ET)

Meet 16 Year Old ET Patient, Simran Bhardwaj

Age: 16 Meet Simran Bhardwaj

Ruth Gunson Essential Thromobocythemia (ET)

Perseverance, Grace, and Laughter: The story of Ruth and Ina

Meet Ruth Gunson

Jedi Polycythemia Vera (PV)

Meet Jedi, a 10-year-old Polycythemia Vera Patient from Texas

Age: 10 Meet Jedi

With an orphan disease, the support can be hard to find. I found that support at the MPN Research Foundation.

Juan Alderete, PV 06

Ready to do more?

Julie and her family joined team MPN and created HikeMF to join the fight against MPNs.

Get Involved Now.

Stay Connected

With your generous gift, you can change a MPN patient's prognosis.

By supporting MPN Research Foundation, you're also supporting countless doctors and researchers around the world who are working to find a cure for these rare diseases.

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A safe space to chat with others living with PV, ET and MF

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MPN Community Calendar

Sat, May 21st, 10am

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