About
MPN Research Foundation

Partner. Advocate. Friend. At the MPN Research Foundation, we’re committed to standing with you in the fight against polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.

About Us

Providing education and resources for a better today. Investing in research for a better tomorrow.

MPNRF By the Numbers

  • $MM
    • MPN Research Funded
    • Researchers Supported
    • Projects Funded

Recent News

Clinical Trial for AVID200 Doses First MF Patient

MPN News | 4/25/19

A TGF-Beta inhibitor - AVID 200 - is joining the race for new therapies for myeloproliferative neoplasms.

Read More

MPN Research Foundation's Patient Registry Featured in Cure Today

MPN News | 4/23/19

In an article published by CURE Magazine, Robyn M. Scherber, M.D., M.P.H, assistant professor of medicine in the Department of Hematology and Oncology at UT Health San Antonio MD Anderson Cancer Center, and co-author Michelle Woehrle, the executive director of the MPN Research Foundation sat down to discuss the newest findings from MPNRF's patient registry, myMPN.

Read More

Update on Promising MF Treatment, Momelotinib

MPN News | 4/12/19

Sierra Oncology is planning a new clinical trial for myelofibrosis patients called the MOMENTUM study.

Read More
More News

What is Primary Myleofibrosis (MF)?

Primary Myleofibrosis (MF)

PMF is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells.

Learn about PMF

What is Essential Thrombocythemia (ET)?

Essential Thrombocythemia (ET)

Most commonly diagnosed in women over the age of 50, ET is associated with a proliferation of platelet precursors in the bone marrow and complications frequently include blood clotting and/or bleeding.

Learn about ET

What is Polycythemia Vera (PV)?

Polycythemia Vera (PV)

The disease is most common in men over the age of 60, but anyone can develop PV. PV patients typically experience an elevated red blood cell count, an elevated platelet count and an enlarged spleen, especially over time.

Learn about PV

Patient Stories

See All Patient Stories

Linda Reekie Polycythemia Vera (PV)

Meet PV patient, Linda Reekie from Port St. Lucie, FL

Meet Linda Reekie

Nancy Francis Essential Thromobocythemia (ET)

Meet ET patient, Nancy Francis from Gander Bay, Newfoundland

Meet Nancy Francis

Jessica Harshbarger Essential Thromobocythemia (ET)

Meet ET patient, Jessica Harshbarger from Chicago, IL

Age: 42 Meet Jessica Harshbarger

Jen Hawkins Essential Thromobocythemia (ET)

Meet ET patient, Jen Hawkins from Tri-Cities, Washington

Age: 31 Meet Jen Hawkins

Karolyn Reder Myelofibrosis (MF)

Meet MF patient, Karolyn Reder of Bay City, Michigan

Age: 36 Meet Karolyn Reder

Simran Bhardwaj Essential Thromobocythemia (ET)

Meet 16 Year Old ET Patient, Simran Bhardwaj

Age: 16 Meet Simran Bhardwaj

With an orphan disease, the support can be hard to find. I found that support at the MPN Research Foundation.

Juan Alderete, PV 06

Ready to do more?

Julie and her family joined team MPN and created HikeMF to join the fight against MPNs.

Get Involved Now.

Stay Connected

With your generous gift, you can change a MPN patient's prognosis.

By supporting MPN Research Foundation, you're also supporting countless doctors and researchers around the world who are working to find a cure for these rare diseases.

Donate Now

Join Cancer Connect

A safe space to chat with others living with PV, ET and MF

Start here!

MPN Community Calendar

HIKEMF
Sat, May 21st, 10am

Attend the Event

MPN Information kit

Be the first to know about what's going on in the PV, ET, and MF community.

Get the Kit