MPN Research Foundation

Partner. Advocate. Friend. At the MPN Research Foundation, we’re committed to standing with you in the fight against polythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.

About Us

Providing education and resources for a better today. Investing in research for a better tomorrow.

MPNRF By the Numbers

  • $MM
    • MPN Research Funded
    • Researchers Supported
    • Projects Funded

Recent News

Katya Ravid makes discovery on using MRI to detect myelofibrosis

MPN News | November 21, 2016
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New NCCN Guidelines outline diagnosis, treatment strategies for MPNs

MPN News | September 30, 2016

NCCN Guidelines document evidence-based consensus-driven management to ensure that all patients receive preventive, diagnostic, treatment, and supportive care services that are most likely to lead to optimal outcomes.

Read More

CTI reports topline data for PERSIST-2 in the hopes of lifting FDA hold in coming months.

MPN News | August 30th, 2016

CTI BIOPHARMA Announces top-line results from PERSIST-2 Phase 3 trial of Pacritnib for high-risk patients with advanced myelofibrosis

Read More
More News

What is Primary Myleofibrosis (MF)?

Primary Myleofibrosis (MF)

PMF is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells.

Learn about PMF

What is Essential Thrombocythemia (ET)?

Essential Thrombocythemia (ET)

Most commonly diagnosed in women over the age of 50, ET is associated with a proliferation of platelet precursors in the bone marrow and complications frequently include blood clotting and/or bleeding.

Learn about ET

What is Polycythemia Vera (PV)?

Polycythemia Vera (PV)

The disease is most common in men over the age of 60, but anyone can develop PV. PV patients typically experience an elevated red blood cell count, an elevated platelet count and an enlarged spleen, especially over time.

Learn about PV

Patient Stories

See All Patient Stories

Tamykah Myelofibrosis (MF)

Tamykah Pitts is sharing her journey with Myelofibrosis. She describes her diagnosis and her pregnancy as an MPN patient..

Age: 33 Meet Tamykah

Kenny Polycythemia Vera (PV)

Completing a 200-mile bike ride in one day may not be for everyone. The training would be hard on healthy people.

Age: N/A Meet Kenny

Elizabeth Essential Thromobocythemia (ET)

Elizabeth Gross and her daughter Page are getting crafty to raise funds for MPN research and awareness.

Age: 40 Meet Elizabeth

Frances Essential Thromobocythemia (ET)

After being misdiagnosed numerous times, finally, Frances was diagnosed with ET at the age of 50. Read his story here.

Age: 50 Meet Frances

Lorraine Essential Thromobocythemia (ET)

I worked for a hospital as Executive Assistant to the CFO from 1990 - 1997. We had to have annual exams and in 1995 they noticed my platelets were high -- around 450,000.

Age: 51 Meet Lorraine

With an orphan disease, the support can be hard to find. I found that support at the MPN Research Foundation.

Juan Alderete, PV 06

Ready to do more?

Julie and her family joined team MPN and created HikeMF to join the fight against MPNs.

Get Involved Now.

Stay Connected

Diagnosed with ET?

Take a moment to read our "Know your MPN" ET infographic. We hope you will use this as a tool to educate yourself, family & friends about MPNs

Get informed

Join Cancer Connect

A safe space to chat with others living with PV, ET and MF

Start here!

MPN Community Calendar

Sat, May 21st, 10am

Attend the Event

MPN Information kit

Be the first to know about what's going on in the PV, ET, and MF community.

Get the Kit