MPN Research Foundation

Partner. Advocate. Friend. At the MPN Research Foundation, we’re committed to standing with you in the fight against polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.

About Us

Providing education and resources for a better today. Investing in research for a better tomorrow.

MPNRF By the Numbers

  • $MM
    • MPN Research Funded
    • Researchers Supported
    • Projects Funded

Recent News

MPN Research Foundation's Patient Registry Featured in CURE Magazine.

MPN News | July 23, 2018

Registry Manager, Lindsey Whyte, discusses the benefits that myMPN brings to MPN patients and researchers with CURE Magazine.

Read More

MPN Research Foundation Launches Stem Cell Transplant Timing Tool for MPN Patients

MPN News | July 19, 2018

The goal of the SSTT tool is to increase successful stem cell transplant outcomes by decreasing the number of delayed transplant for MPN patients.

Read More

Dr. Ruben Mesa Featured in Rare Diseases Report Magazine

MPN News | June 26, 2018

Dr. Mesa discusses updates on emerging innovations, his views about the greatest obstacles facing the treatment of rare diseases & his support for the working as a team when treating MPNs

Read More
More News

What is Primary Myleofibrosis (MF)?

Primary Myleofibrosis (MF)

PMF is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells.

Learn about PMF

What is Essential Thrombocythemia (ET)?

Essential Thrombocythemia (ET)

Most commonly diagnosed in women over the age of 50, ET is associated with a proliferation of platelet precursors in the bone marrow and complications frequently include blood clotting and/or bleeding.

Learn about ET

What is Polycythemia Vera (PV)?

Polycythemia Vera (PV)

The disease is most common in men over the age of 60, but anyone can develop PV. PV patients typically experience an elevated red blood cell count, an elevated platelet count and an enlarged spleen, especially over time.

Learn about PV

Patient Stories

See All Patient Stories

Wim Louage Essential Thromobocythemia (ET)

Click here to read about the journey that lead to Wim's 2015 Essential Thrombocythemia diagnosis.

Meet Wim Louage

Leah Kuhn Essential Thromobocythemia (ET)

Leah Kuhn is sharing her journey with Essential Thrombocythemia. Click here to read about her positive attitude and her decision to not let ET define her!

Meet Leah Kuhn

Jay Potter Essential Thromobocythemia (ET)

ET patient, Jay Potter, attributes a healthy diet and physical activity to feeling well

Meet Jay Potter

Jeremy Smith Polycythemia Vera (PV)

Read more about how Jeremy didn't let having an MPN diagnosis for nearly three decades stop him from chasing his dreams.

Age: 59 Meet Jeremy Smith

Ashley Essential Thromobocythemia (ET)

I have found it to be very difficult at times in life to discern intuition from anxiety.

Meet Ashley

With an orphan disease, the support can be hard to find. I found that support at the MPN Research Foundation.

Juan Alderete, PV 06

Ready to do more?

Julie and her family joined team MPN and created HikeMF to join the fight against MPNs.

Get Involved Now.

Stay Connected

With your generous gift, you can change a MPN patient's prognosis.

By supporting MPN Research Foundation, you're also supporting countless doctors and researchers around the world who are working to find a cure for these rare diseases.

Donate Now

Join Cancer Connect

A safe space to chat with others living with PV, ET and MF

Start here!

MPN Community Calendar

Sat, May 21st, 10am

Attend the Event

MPN Information kit

Be the first to know about what's going on in the PV, ET, and MF community.

Get the Kit