About
MPN Research Foundation

Partner. Advocate. Friend. At the MPN Research Foundation, we’re committed to standing with you in the fight against polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.

About Us

Providing education and resources for a better today. Investing in research for a better tomorrow.

MPNRF By the Numbers

  • $MM
    • MPN Research Funded
    • Researchers Supported
    • Projects Funded

Recent News

Study Assess Current Recommended Guidelines for the Treatment of PV Patients

MPN News | October 31, 2018
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Ropeginterferon reduces JAK2 burden compared to Hydroxyurea in PV according to new study

MPN News | October 15, 2018

After 1 year of treatment with ropeginterferon, the ratio of JAK2-mutated to wild-type colonies grown from bone marrow progenitors was reduced by 64%, compared to 25% in patients receiving hydroxyurea.

Read More

Classification and Prognostic Models Developed for MPN Patient Outcomes

MPN News | 10/11/18
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More News

What is Primary Myleofibrosis (MF)?

Primary Myleofibrosis (MF)

PMF is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells.

Learn about PMF

What is Essential Thrombocythemia (ET)?

Essential Thrombocythemia (ET)

Most commonly diagnosed in women over the age of 50, ET is associated with a proliferation of platelet precursors in the bone marrow and complications frequently include blood clotting and/or bleeding.

Learn about ET

What is Polycythemia Vera (PV)?

Polycythemia Vera (PV)

The disease is most common in men over the age of 60, but anyone can develop PV. PV patients typically experience an elevated red blood cell count, an elevated platelet count and an enlarged spleen, especially over time.

Learn about PV

Patient Stories

See All Patient Stories

Cliff Reyda Myelofibrosis (MF)

Click here to read about Cliff and his MPN diagnosis 26 years ago.

Meet Cliff Reyda

Ally DuVall Polycythemia Vera (PV)

Click here to read about Ally and her PV diagnosis at only 24 years old

Age: 24 Meet Ally DuVall

Mike Harrington Myelofibrosis (MF)

Click here to learn more about Mike and Tracy's battle with intermediate stage 2 Primary Myelofibrosis.

Meet Mike Harrington

Wim Louage Essential Thromobocythemia (ET)

Click here to read about the journey that lead to Wim's 2015 Essential Thrombocythemia diagnosis.

Meet Wim Louage

Leah Kuhn Essential Thromobocythemia (ET)

Leah Kuhn is sharing her journey with Essential Thrombocythemia. Click here to read about her positive attitude and her decision to not let ET define her!

Meet Leah Kuhn

With an orphan disease, the support can be hard to find. I found that support at the MPN Research Foundation.

Juan Alderete, PV 06

Ready to do more?

Julie and her family joined team MPN and created HikeMF to join the fight against MPNs.

Get Involved Now.

Stay Connected

With your generous gift, you can change a MPN patient's prognosis.

By supporting MPN Research Foundation, you're also supporting countless doctors and researchers around the world who are working to find a cure for these rare diseases.

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Join Cancer Connect

A safe space to chat with others living with PV, ET and MF

Start here!

MPN Community Calendar

HIKEMF
Sat, May 21st, 10am

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MPN Information kit

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