2024-2026 Patient Impact Council Announced
An MPNRF Patient Impact Council recently launched to actively advocate for the patient voice and perspective in all aspects of our work to promote research advances and therapies with meaningful patient benefits.
Created with very clear objectives and activities, the council includes individuals representing diversity in MPN experiences, diagnosis, skills, community connections, geographic locations, and demographics. Members include those living with ET, PV, MF, and acute myeloid leukemia (AML), as well as those who have undergone bone marrow transplantation or are caregivers.
“Ultimately, a Patient Impact Council not only serves as a moral imperative, but also a practical necessity to focus our research on meaningful advancements in healthcare that directly benefit those they intend to serve—patients,” according to MPNRF Associate Director of Patient Engagement Sara Douglas.
Members of the council will work collaboratively with MPNRF staff and its funded research teams, including providing feedback to help inform MPNRF’s research strategy and priorities, including to offer feedback on research projects and content of MPNRF publications.