MPNRF Blog

MPNRF's Executive Director Discusses the Interferon Initiative

The MPN Research Foundation has invested more in Interferon research in the past few years through our MPN Interferon Initiative, a global collaboration among researchers and patient advocacy organizations. Interferon is a drug that has been on the market for decades. It was developed to treat viral infections like hepatitis B, but the medical community has also found uses for it in the treatment of cancer, including myeloproliferative neoplasms (MPNs). [...]

CONTINUE READING

Goodbye 2018, Hello 2019!

[...]

CONTINUE READING

Patient advocacy groups and pharma money

You may have seen articles recently (here and here are two examples) on the issue of patient advocacy organizations or physicians taking funds from the pharmaceutical industry. We at MPNRF have been thinking a lot about this for years. In 2011 we adopted and published a policy on how MPNRF would maintain independence and neutrality in light of accepting contributions from sources that include pharmaceutical and smaller biotech companies. These funds come in the form of support for: [...]

CONTINUE READING

History was made in Chicago last month

[...]

CONTINUE READING

Empowering the MPN patient, and the Good Stem Cells into the Future

Dr. Angela Fleischman has been researching the familial prevalence of MPNs for nearly ten years. A faculty member at the University of California Irvine, she hopes to one day be able to study patients remotely to expand her research outside of the Southern California area and broaden the scope of the MPN patient family registry. Dr. Fleischman earned her Ph.D. and MD from Stanford University and knew early on her goals of the research. [...]

CONTINUE READING

What happens in Prague really shouldn't stay in Prague

Over 50 MPN patient advocate groups from around the globe congregated in Prague, Czech Republic, this August. The purpose was to share best practices, learn about what is going on in MPN research and also what issues patients in their countries are grappling with. [...]

CONTINUE READING

Are PV, ET and MF passed down in families?

Written by Robyn Scherber, MD [...]

CONTINUE READING
Next >>

About the Blog

Check back regularly for updates about what’s happening in the MPN community, from advocacy to research..

x

NEVER MISS AN UPDATE

Get free, timely information on living with an MPN.

Subscribe