The MPN Research Foundation has a single goal: to stimulate original research in pursuit of new treatments -- and eventually a cure -- for polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN).
Diagnosed with polycythemia vera in 1997, Chicago business man Robert Rosen was shocked to learn that little research was being conducted on PV, ET, and MF, and that there was no advocacy groups working to assist people with these rare blood cancers. In 1999, Rosen, Bob Pritzker and two other MPN patients established the MPN Research Foundation (at the time known as MPD Foundation) as a way to change all that.
Founded by patients, for patients, terms on every research grant are negotiated to maximize the dollars invested in actual research. We only fund projects relevant to PV, ET, and MF and are always mindful of selecting projects that will accelerate understanding of the MPNs in hopes of finding a cure.
To date, the Foundation has awarded approximately nine million dollars for MPN research. While our priority remains on funding innovative and accountable research, we have also increased our efforts to educate and empower the MPN community of patients, family members, doctors and researchers. We offer a free newsletter, assist support groups, and work with other organizations to educate patients. In addition we respond to through events. rganizations on key patient issues; and link patients to support groups worldwide.
To join our mailing list, please click here or contact us now.