Patient Support Groups
Progress in MPN research is strengthened when the community is informed and connected. From our unique position at the intersection of patients and caregivers, researchers and clinicians, and industry partners, MPN Research Foundation advances MPN science and shares trusted, research‑backed resources—including information about patient support groups led by others in the MPN ecosystem. Keep scrolling to explore patient support groups available through trusted partners in the MPN community.
United States & Canada
MPN patient support groups are communities who meet to learn and network with other patients and caregivers. We have compiled a list of United States and Canada based support groups below.
Vancouver
Group: North Texas DFW MPN Patient Support Group
Contact: James Livermore or Andrea Spica
Email: jlmore2@gmail.com or Adreaspica@gmail.com
Phone: 1 (806) 790-3454
Focus: All MPNs
Virtual (Zoom)
North Texas
Group: Blood Cancer Support Group
Contact: Deja Bowen
Email: DBOWEN@WKHS.COM
Phone: 1 (318) 212-8026
Link: https://www.wkhs.com/classes-and-events/support-groups/blood-cancer-support-group
Focus: All Blood Cancers
In-Person at Willis-Knighton Cancer Center
Group: MPN Support Texas
Contact: Tina Cooper
Email: tina_cooper@entouch.net
Phone: 1 (713) 805-0611
Link: https://www.facebook.com/groups/MPNSupportTX/
Focus: All MPNs
Hybrid (In-person with virtual option) and Facebook Group
Houston
Boise
Group: Idaho MPN Support Group
Contact: Jena Brydson
Email: JABrydson@gmail.com
Phone: 1 (208) 412-3039
Focus: All MPNS
In-Person
Group: BC MPN Patient Support
Contact: Mark Williams
Email: vancouver@canadianmpnnetwork.ca
Focus: All MPNs
Virtual (Zoom)
Bossier City
US-All (Nationwide)
Group: Pittsburgh MPN Support Group
Contact: Jean Diesch
Email: mpn.pgh.sup@gmail.com
Phone: 1 (724) 831-0368
Focus: All MPNs
Hybrid (In-person at Allegheny General Hospital with virtual option)
US-All (Nationwide)
Group: MPN Support Group-Central Florida
Contact: Natasha Johnson
Natasha.Johnson@moffitt.org
In-person at the Lakeland Public Library
Central Florida
Group: NYC+ MPN Support Group
Contact: Jo Ann Mannino
Email: Joann.Mannino@gmail.com
Phone: 1 (347) 752-0939
Focus: All MPNs
Virtual (Zoom)
New York City
Group: MPN Ontario
Contact: Joanne McKinley
Email: mpnontario@gmail.com
Focus: All MPNs
Hybrid (In-person and virtual option (Zoom))
Ontario
Group: Utah LLS MPN Support Group/Colorado Blood Cancer Institute
Contact: Daniel Weinshenker or Dawn Guerrero
Email: Dawn.Guerrero@lls.org
Focus: All MPNs
Virtual (Zoom)
Outside United States & Canada
Find support in your country here: Link
Don’t see a group in your area? Please email patientengagement@mpnrf.org.
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