Educate. Empower. Impact.
Are you ready to make a real difference in MPN research and advocacy? Join our MPN Pathways: Empowered Voices in Research Training Series, a comprehensive program designed to educate, engage, and empower patients and caregivers. This series is your gateway to becoming a knowledgeable advocate who can influence and impact the future of MPN research.
PROGRAM DURATION:
July 2024 –
September 2026
FORMAT:
Live quarterly webinars & recordings on-demand
CERTIFICATION:
Certification received upon completion
Upcoming Webinar
Upcoming Session: Empowered Voices in Research
Patients and Caregivers’ Guide to Scientific Presentations
June 18th, 2026 5 – 6 PM CST
Meet our expert speakers – Drs. Amielle Moreno and Tyler Parsons
Amielle Moreno, PhD Scientific Content Manager, MPN Research Foundation
Dr. Moreno specializes in translating complex scientific research into clear, accessible information for patients and caregivers, helping communities engage more confidently with research.
Tyler Parsons, PhD MPN Researcher and Patient Advocate
Dr. Parsons is both an MPN patient and a biomedical researcher focused on MPN biology and disease progression. He brings a unique perspective that bridges scientific research and patient understanding.
Join us for MPN Pathways: Empowered Voices in Research – A patients and caregivers’ guide to scientific presentations. Understanding myeloproliferative neoplasm (MPN) research can feel overwhelming, especially when you are learning as much as you can for yourself or a loved one. This interactive session will explain the various ways research is presented and explain why scientific presentations can be challenging to follow. From abstracts to posters, webinars to scientific publications, we will share tools to help you identify the key messages scientists are trying to convey. After this session, we hope you can interpret more meaning behind research you encounter and feel confident forming questions. Whether you are new to MPN research or want to build on what you already know, this program is designed to help you navigate scientific information with more clarity and ease. No scientific background is needed — only an interest in understanding the research that shapes the future of MPN care.
Key Learning Objectives:
Recognize why scientific presentations can feel difficult to understand and feel more confident that confusion or overwhelm is normal and not a personal failure.
Identify the different types of scientific presentations (abstracts, posters, talks, papers, webinars) and understand what information each is designed to convey and for whom.
Break down a scientific presentation into its core components—background, study design, results, and conclusions—to identify the main message without needing technical expertise.
Interpret how scientists communicate evidence and uncertainty, including why cautious language is used and why findings can be meaningful even when not definitive.
Apply practical strategies immediately to engage more confidently with scientific information, including asking clarifying questions, taking effective notes, and identifying what information is most relevant to them.
Webinar Library
Evaluations
Webinar Evaluations
Webinar evaluations will be posted here post event. Certifications will be issued after the last webinar once all evaluations been completed.
Session 1: Intro to MPN Research Foundation & MPN 101
Session 2: The Lifecycle of Drug Development
Session 3: MPN Clinical Trials 101
Session 4: FDA 101
Session 5: Patient & Caregiver Voices in Research
Session 6: Clinical Trial Protocol 101
Session 7: Informed Consent
Session 8: Patients and Caregivers’ Guide to Scientific Presentations
MPN Pathways – Schedule
Year 1 : Foundational Knowledge
Q3 2024
Speaker: Sara Douglas, MSN, RN, OCN
Intro MPN Research Foundation & MPN 101
Recording / Evaluation
Q4 2024
Speaker: Dr. Scott Weir, PharmD, PhD
The Life Cycle of Drug Development
Recording / Evaluation
Year 2 : Clinical Insights and Patient Advocacy
Q1 2025
Speaker: Christina Persaud, RN, BSN, CCRP
MPN Clinical Trials 101
Recording / Evaluation
Q22025
Speaker: Sarah Wicks
FDA 101
Recording / Evaluation
Q3 2025
Speaker: Patty Spears
Patients and Caregivers’ Voices in Research
Recording / Evaluation
Q4 2025
Speaker: Dr. Jane Perlmutter, PhD, MBA
Clinical Trial Protocol 101
Recording / Evaluation
Year 3 : Advanced Topics and Practical Skills
Q1 2026
Speaker: Emily Largent, JD, PhD, RN
Informed Consent
Recording / Evaluation
Q2 2026
Speakers: Drs. Amielle Moreno and Tyler Parsons
Patients and Caregivers’ Guide to Scientific Presentations
Registration / Evaluation
Q3 2026
Speaker: Dr. Mesa
Patient-Reported Outcomes and Quality of Life in MPNs
Certification Program
The MPN Pathways: Empowered Voices in Research Certification Program, made up of 9 expert-led webinar sessions, will be presented live every quarter through 2026. Participants will receive a certification upon completing the steps below, recognizing their commitment and expertise in MPN research advocacy:
WATCH – Participants must view all 9 webinars in the series to complete the program.
EVALUATE – Participants will also be required to complete an online evaluation of each webinar after they attend the session live or view the recording which will be made available within the Webinar Library.
CERTIFIED – Participants that complete all 9 webinar evaluations will receive an MPN Pathways: Empowered Voices in Research certificate via email that they can print and proudly display!
Evaluations can be accessed via email after each live session or on MPN Research Foundation’s website. Upon completing all 9 sessions and evaluations, participants will receive an MPN Pathways: Empowered Voices in Research certificate via email to print and display proudly!
Important Note: If you cannot attend the live webinars, don’t worry! All sessions will be recorded and made available to you.
Addressing your concerns
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Our quarterly webinars and on-demand modules allow you to learn at your own pace. Each session is designed to be comprehensive yet manageable.
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We break down complex topics into easy-to-understand segments, ensuring that everyone, regardless of background, can follow along and benefit.
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Every session provides actionable knowledge and resources directly applicable to your advocacy efforts. Your involvement can significantly shape the future of MPN research and treatment.