Online forums
There are many online forums and groups organized around MPNs. These are easy ways to get introduced to people with essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF). Caregivers also participate in online forums, and they are excellent formats in which to share information.
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Contact: MPN Education Foundation
Email: Joann.Mannino@gmail.com
Listserv: https://mpninfo.org/support/mpn-net-online-support-group/
Focus: All MPNs
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Contact: Blood Cancer United
Registration: https://bloodcancerunited.org/form/contact-us
Focus: All blood cancers
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Contact: Blood Cancer UK
Focus: All MPNs in the UK
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