One patient hoped to bring a few dozen people together and instead saw over 200 join in person and online. Another told his MPN story to strangers around the world and watched as they began telling stories of their own. A third transformed a personal connection into a grassroots fundraising effort that rallied friends, family, and supporters to invest in research when time was running out. Their approaches were different, but their goal was the same: to ensure that MPNs are seen, understood, and never forgotten.