MPNRF Advocacy and Policy Contributions

We continue to talk to the FDA about topics related to MPN including end points, drug availability, new therapies and more. 

Signed on to letter requesting updates to the oversight framework for diagnostic tests, which would provide better consistency between labs in how patients are tested. January 2017

Assisted Be The Match / American Society for Blood and Marrow Transplantation in their efforts to extend Medicare coverage to stem cell transplants for people with Myelofibrosis. Click here to read CMS' decision memo. January 2016

Supported the petition to lower the cost of drugs. August 2015

Patient volunteers of MPNRF participated in the OVAC Lobby Day June 2015