Fatigue is one of the most widely reported symptoms of people living with a myeloproliferative neoplasm. Though common, it is not well understood. A collaborative effort is now underway to 1. help further understanding of the fatigue associated with MPNs and 2. lay the groundworks for the design of a clinical trial to test interventions.
This project is spearheaded by Dr. Ruben Mesa of the Mayo Clinic, Dr. Claire Harrison of Guy’s and St Thomas’ Hospital in London, and Zhenya Senyak and Dr. Michael Goldestein of MPN Forum. To join the MPN Fatigue Project and receive updates, progress reports and recruitment notices send an email to firstname.lastname@example.org with “fatigue” in the subject line or fill out the MPN Fatigue survey questionnaire.