News & articles

December 10, 2013 MPN Research Foundation grantee Robert Kralovics was one of two labs to discover a new genetic mutation that accounts for most of the cases of JAK2 negative MPN patients. Reporting at ASH’s Annual Meeting, Dr. Kralovics revealed the discovery of the Calreticulin, or CALR, mutation in 73% of MPN patients who do… Read More »2013: CALR GENETIC MUTATION DISCOVERED FOR MPN

December 3, 2013 As you may have heard, a clinical trial of PRM-151 in patients with myelofibrosis, including primary MF, post polycythemia MF, and post essential thrombocythemia MF is now open at the centers listed below. PRM-151 is a pharmaceutically produced form of Pentraxin-2, a naturally occurring protein that plays a role in the body’s… Read More »PRM 151 RECRUITING MF PATIENT

Giving is as important as receiving during the holiday season. This season has not been easy…a typhoon hit the Philippines, deadly tornadoes in the Midwest and snow in the West and East coast. Many people are worried about the economy and jobs. #GivingTuesday on Tuesday, December 3, was a chance to focus on the true… Read More »THANK YOU FOR GIVING TUESDAY 2013

January 29, 2013 In 2013, Incyte Corporation (the makers of Jakafi) in collaboration with CURE Media Group, established a program to honor members of the MPN community. Each honoree can designate an organization to receive $25,000. One of this year’s recipients, Ashley Gould, designated the MPN Research Foundation as the recipient of that prize. Ashley… Read More »MPN HERO DESIGNATES $25,000 FOR RESEARCH

Fatigue is one of the most widely reported symptoms of people living with a myeloproliferative neoplasm. Though common, it is not well understood. A collaborative effort is now underway to 1. help further understanding of the fatigue associated with MPNs and 2. lay the groundworks for the design of a clinical trial to test interventions.… Read More »MPN FATIGUE PROJECT 2013

December 6, 2012 In their ongoing efforts to provide support and resources to the MF community, MPN Research Foundation partner the Cancer Support Community is happy to announce a free webinar Tuesday, December 18th at 3:30 PM EST for those affected by myelofibrosis. This webinar is geared to help patients, caregivers, and others better understand myelofibrosis and… Read More »FRANKLY SPEAKING ABOUT CANCER: MF

Speeding Up the Discovery of Drugs By John Tozzi on November 29, 2012 When Scott Johnson read an article about a potential breakthrough that restored nerve function in mice with multiple sclerosis, he assumed it would soon be turned into a treatment. That was in 2001. Johnson, who was diagnosed with MS at age 20 in 1976,… Read More »BLOOMBERG BUSINESSWEEK ADDRESSES THE SLOW PROGRESS OF DRUG DISCOVERY AND CITES THE MPN RESEARCH FOUNDATION

September 11, 2012 At the urging of the MPN Research Foundation Illinois Governor Pat Quinn has proclaimed September 20th Myelofibrosis Awareness Day in Illinois! The governor recognized the plight of MF patients who are faced with this rare and progressive blood cancer which can be fatal. Patients, family members and friends will be working hard… Read More »GOVERNOR PAT QUINN PROCLAIMS SEPTEMBER 20TH AS MF DAY IN ILLINOIS

When a patient is diagnosed with myelofibrosis, polycythemia vera, or essential thrombocythemia, it can be an overwhelming and distressing message. Before the advent of the internet it was often difficult to impossible for patients to connect with other individuals who shared their questions and concerns. Today that could not be further from the truth; there… Read More »BLOOD CANCER AWARENSS MONTH: PATIENTS WORKING TOGETHER

Seven Top Hematologists Help Patients Fight Rare Leukemia in a New, Free, On-line Service From MPN ForumJuly 10, 2012 There’s a leukemia so rare – about five cases per one million persons – that chances are you never heard of it or met anyone suffering from it. Most family doctors and even many hematologists have never seen… Read More »MPN CLINIC – BROUGHT TO YOU BY MPN FORUM