It's Rare Disease day AND a MATCH day!
Today is Rare Disease Day! Did you know that the zebra is the official symbol of rare diseases in the US? The MPNRF team is wearing stripes today to show our solidarity with the rare disease community. We hope you Wear your stripes and post a picture to social media to help us spread awareness for myeloproliferative neoplasms!
The MPN Research Foundation is doing our part to advocate for the MPN patient population. The needs of patients are first and foremost in our minds when we choose what researchers to support, have conversations with the FDA, and raise awareness about these rare blood cancers. Today our Executive Director is in Washington DC to participate in Rare Disease Week on Capitol Hill. Michelle is learning more about federal legislative issues and their impact on rare diseases, meeting other advocates, and sharing the unique stories of MPN patients with legislators. Look for a report on her experience next week!
There are so many ways you can support our work. We hope you choose to roll up your sleeves and help us today as we add our voices to the rest of the rare disease community.
#BecomeAnAdvocate #ShowYourStripes #RareDiseaseDay #MPNRF