We believe an educated patient is an empowered patient. We connect those with MPN to resources that can help them manage their disease now and fight for better treatments and cures for the future. Here are some of the ways we help educate patients.
Because we believe in the power of peer to peer support, we assist support group leaders with reaching out to patients, with help finding a speaker for their groups and by supplying materials as requested.
Create materials that help MPN patients better understand PV, ET and MF, what its like to be a caregiver to someone with MPN, information on clinical trials and more.