Clinical trials are research programs conducted with patients to evaluate a new medical treatment, drug, or device. Clinical studies help bridge research and patient care through the evaluation of therapies, drugs and diagnostic tools and can even lead to medical breakthroughs. Both patients and medical researchers benefit from clinical trials. As a clinical trial participant,… Read More »MPN CLINICAL TRIALS: WHAT TO EXPECT
Does a Myeloproliferative Neoplasm (MPN) diagnosis mean you have cancer? Because doctors use the word ‘neoplasm’ (new growth) for both cancerous (malignant neoplasms) and non-cancerous tumors (benign neoplasms), there has been some debate within medical circles about whether MPNs are types of cancer. MPNs occur when bone marrow makes too many red blood cells, white… Read More »ARE MYELOPROLIFERATIVE NEOPLASMS (MPNS) CANCER?
BLOOD ARTICLE DISCUSSES EPIGENETIC CHANGES IN MYELOFIBROSIS FOLLOWING DISCONTINUATION OF RUXOLITINIB
MPNRF | March 27, 2021
The MPN community is discussing the article by MPN researchers from MD Anderson – Clonal evolution and outcomes in myelofibrosis after ruxolitinib discontinuation – a retrospective study of 107 patients who discontinued ruxolitinib. The authors discussed the acquisition of additional mutations which took place in 35% of patients on Ruxolitinib, most notable the ASXL1 gene, which was… Read More »BLOOD ARTICLE DISCUSSES EPIGENETIC CHANGES IN MYELOFIBROSIS FOLLOWING DISCONTINUATION OF RUXOLITINIB
MPNRF | March 27, 2021
Parterships are Important. They bring people together in pursuit of a common cause and put many minds to work on a problem, increasing the likelihood that a solution is found. That’s why we are getting into the business of creating partnerships. The MPN Research Foundation believes that researchers in the field should be collaborating across… Read More »THE IMPORTANCE OF PARTNERSHIPS IN THE MPN COMMUNITY
Today, our family is honoring our father by supporting the MPN Research Foundation. Will you join us? This upcoming Sunday is Father’s Day, and every year our family reminisces about the wonderful memories and lessons we have from our father, Harvey Gould. We are fortunate to have so many of his thoughts preserved in the songs… Read More »HONORING OUR DAD – HARVEY GOULD FUND
Written by Robyn Scherber, MD Familial predisposition to MPN is something that we have suspected to be occurring for many years. A recent study reported in Blood Journal drawing off of a large cancer database in Europe reinforces this suspicion. When MPNRF shared this report recently, it prompted many good questions from people in the MPN community who… Read More »ARE PV, ET AND MF PASSED DOWN IN FAMILIES?
Over 50 MPN patient advocate groups from around the globe congregated in Prague, Czech Republic, this August. The purpose was to share best practices, learn about what is going on in MPN research and also what issues patients in their countries are grappling with. We learned a lot about struggles and triumphs globally. The problems… Read More »WHAT HAPPENS IN PRAGUE REALLY SHOULDN’T STAY IN PRAGUE
Dr. Angela Fleischman has been researching the familial prevalence of MPNs for nearly ten years. A faculty member at the University of California Irvine, she hopes to one day be able to study patients remotely to expand her research outside of the Southern California area and broaden the scope of the MPN patient family registry.… Read More »EMPOWERING THE MPN PATIENT, AND THE GOOD STEM CELLS INTO THE FUTURE
This past September we attended the first-ever meeting for people with Pediatric MPN and their friends and family. Held in Chicago, this meeting was organized by MPN Advocacy and Education, International as part of their drive to educate and raise awareness about MPNs. MPN Research Foundation was there as a sponsor and to hear first… Read More »HISTORY WAS MADE IN CHICAGO LAST MONTH
Our goal at MPN Research Foundation is to continue investing in research for better treatments while providing education and resources for the MPN community. In order to ensure we are meeting the unmet needs of the patient population, we have founded the MPN Impact Council. The MPN Impact Council will serve MPNRF in an advisory… Read More »THE MPN IMPACT COUNCIL
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Check back regularly for updates about what’s happening in the MPN community, from advocacy to research..