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MPNRF BLOG

  • BLACK LIVES MATTER

    The nation has been roiled by a movement that recognizes how long overdue we are in dealing with inequality on the basis of race. Rather than stay silent because our mission is focused on supporting people living with a myeloproliferative neoplasm, we realized that this IS our lane. We know that there are systemic biases… Read More »BLACK LIVES MATTER

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    ASH CONFERENCE FEATURES EXCITING MPN UPDATES INCLUDING MPNRF FUNDED RESEARCH

    American Society of Hematology Conference Features Exciting MPN Updates Including MPNRF Funded Research Normally the annual meeting of the American Society of Hematology (commonly referred to simply as “ASH”) takes place in a conference center in a major city. True to 2020 style, this year’s conference was all virtual but, fortunately, no less productive! Of… Read More »ASH CONFERENCE FEATURES EXCITING MPN UPDATES INCLUDING MPNRF FUNDED RESEARCH

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    INTERNATIONAL WOMEN’S DAY: THANK YOU TO OUR MPN RESEARCHERS!

    March 8th is recognized as International Women’s Day, a day to recognize the contribution of women to society, globally. The MPN Research Foundation has long championed the work of women in MPN research. Currently we are supporting several projects helmed by women who are doing groundbreaking work in the study of PV, ET and MF:… Read More »INTERNATIONAL WOMEN’S DAY: THANK YOU TO OUR MPN RESEARCHERS!

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    PROMISING MF TREATMENT, MOMELOTINIB, IN DEVELOPMENT ONCE MORE

    April 12, 2019 After completing a number of clinical trials, The MPN community was disappointed when a promising compound in development for myelofibrosis, momelotinib, was discontinued by Gilead Sciences Inc. So, it was a great relief when, in 2018, Sierra Oncology acquired momelotinib with the intention of continuing the development of the drug.  Sierra Oncology… Read More »PROMISING MF TREATMENT, MOMELOTINIB, IN DEVELOPMENT ONCE MORE

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    MPNRF’S EXECUTIVE DIRECTOR DISCUSSES THE INTERFERON INITIATIVE

    The MPN Research Foundation has invested more in Interferon research in the past few years through our MPN Interferon Initiative, a global collaboration among researchers and patient advocacy organizations. Interferon is a drug that has been on the market for decades. It was developed to treat viral infections like hepatitis B, but the medical community… Read More »MPNRF’S EXECUTIVE DIRECTOR DISCUSSES THE INTERFERON INITIATIVE

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    RARE DISEASE ADVOCACY SUMMER

    Summer is here and Rare Across America has a unique opportunity to connect Members of Congress with their constituents who are living with a rare disease such as Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis. Their program sets up meetings with advocates and Members of Congress or their staffers for a discussion on something YOU know… Read More »RARE DISEASE ADVOCACY SUMMER

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    LET THE FDA KNOW ABOUT YOUR EXPERIENCE LIVING WITH PV, ET OR MF!

    You may have heard that MPNRF, along with fellow MPN advocates, is holding an externally-led Patient Focused Drug Development meeting with the FDA this September. If you are living with PV, ET or MF we are making sure your voice counts and is heard by the FDA. One of the means of doing this is collecting feedback via a… Read More »LET THE FDA KNOW ABOUT YOUR EXPERIENCE LIVING WITH PV, ET OR MF!

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    HOW TO IDENTIFY MYELOPROLIFERATIVE NEOPLASMS

    Identifying Myeloproliferative Neoplasms (MPNs) can be a challenge. Many symptoms are general and correspond with a variety of other conditions that are not necessarily specific to MPNs. Some people have no symptoms while others can experience a variety of symptoms.  Some people with MPNs have no symptoms at diagnosis and the symptoms can depend on… Read More »HOW TO IDENTIFY MYELOPROLIFERATIVE NEOPLASMS

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    “CANCER IS A THIEF”

    Some may wonder what drives someone to become a Cancer researcher. In this video titled “Cancer is a thief” Dr. Ruben Mesa speaks movingly of his personal and professional motivations as a Cancer Center Director, renowned MPN researcher and human being who has experienced personal loss. Thank you Dr. Mesa for sharing your personal story,… Read More »“CANCER IS A THIEF”

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    WHY JOIN THE MPN PATIENT REGISTRY?

    The MPN Research Foundation’s patient registry, myMPN, is an online tool that collects critical data for research and serves as a repository for patient medical records and information. It’s an important resource for the MPN community that provides benefits to patients, scientists and healthcare professionals. There is a myriad of reasons to join but perhaps… Read More »WHY JOIN THE MPN PATIENT REGISTRY?

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  • ABOUT THE BLOG

    Check back regularly for updates about what’s happening in the MPN community, from advocacy to research..

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