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MPNRF BLOG

  • INTRODUCING THE MPN FOUNDATION’S OFFICIAL BLOG

    The MPD Foundation is a decade old this year. We are currently waiting for proposals to arrive for the 2011 grant cycle and are looking forward to continuing to hold patient-education symposia, the first of which was held in May 2010. We continue to distribute MPD brochures to doctors and patients around the world and… Read More »INTRODUCING THE MPN FOUNDATION’S OFFICIAL BLOG

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    PRICING ORPHAN DRUGS

    On a daily basis at least one of us at the MPD Foundation office is actively thinking about MPD treatments – mostly how to find more through our various projects. Whether planning a fundraiser, assisting a patient support group coordinator or looking at grant proposals, everything points back to creating an opportunity for MPD patients… Read More »PRICING ORPHAN DRUGS

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    MPD PATIENT SYMPOSIA EDUCATE AND EMPOWER

    The MPD Foundation believes that an educated patient is an empowered patient who can share what they know with their health care professionals to optimize treatment protocols and be able to fully participate in important decisions for their future care. To that end, in May 2010, the MPD Foundation hosted a patient education symposium in… Read More »MPD PATIENT SYMPOSIA EDUCATE AND EMPOWER

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    CHALLENGE GRANTS

    Requests for proposals (RFP) for MPD Foundation’s 2010 Challenge Grant program left the office in May, making their way into the hands of researchers actively involved with or thinking about getting into the world of myeloproliferative disorders. MPD Foundation grant programs have gone through several incarnations that illustrate how our priorities have changed as we… Read More »CHALLENGE GRANTS

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    MPD FOUNDATION DISTRIBUTES BROCHURES THROUGH NORD’S MEDICAL MEETINGS INITIATIVE

    The mission of the National Organization for Rare Disorders (NORD) is to assist individuals with rare disorders through advocacy, funding research and promoting networking among individuals and organizations interested in orphan disorders.  We at the MPD Foundation are always looking for ways to tell people the story of myeloproliferative disorders and reach more patients.  As… Read More »MPD FOUNDATION DISTRIBUTES BROCHURES THROUGH NORD’S MEDICAL MEETINGS INITIATIVE

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    MEETING OF THE MINDS FOR MPD RESEARCHERS

    The annual meeting of the American Society of Hematology takes place each year in early December.  For the past 2 years the MPD Foundation has exhibited, distributing our free patient brochure as well as speaking with hematologists who specialize in MPDs about treatments and patient numbers.  During these events we also take time to meet… Read More »MEETING OF THE MINDS FOR MPD RESEARCHERS

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    MPD PATIENTS CONNECT THROUGH SOCIAL MEDIA

    With increased access to and understanding of technology, people are finding their way online, searching out interests like cooking, basketball and even myelofibrosis.  Once assumed to be the domain of the young and frivolous, a new group has turned to the internet as a means of learning about and connecting to what is important to… Read More »MPD PATIENTS CONNECT THROUGH SOCIAL MEDIA

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    PRICING ORPHAN DRUGS

    On a daily basis at least one of us at the MPD Foundation office is actively thinking about MPD treatments – mostly how to find more through our various projects. Whether planning a fundraiser, assisting a patient support group coordinator or looking at grant proposals, everything points back to creating an opportunity for MPD patients… Read More »PRICING ORPHAN DRUGS

    CONTINUE READING

    INTRODUCING THE MPN FOUNDATION’S OFFICIAL BLOG

    The MPD Foundation is a decade old this year. We are currently waiting for proposals to arrive for the 2011 grant cycle and are looking forward to continuing to hold patient-education symposia, the first of which was held in May 2010. We continue to distribute MPD brochures to doctors and patients around the world and… Read More »INTRODUCING THE MPN FOUNDATION’S OFFICIAL BLOG

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  • ABOUT THE BLOG

    Check back regularly for updates about what’s happening in the MPN community, from advocacy to research..

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