Are Myeloproliferative Neoplasms (MPNs) Cancer?

Does a Myeloproliferative Neoplasm (MPN) diagnosis mean you have cancer? Because doctors use the word ‘neoplasm’ (new growth) for both cancerous (malignant neoplasms) and non-cancerous tumors (benign neoplasms), there has been some debate within medical circles about whether MPNs are types of cancer.  [...]


MPN Clinical Trials: What to Expect

Clinical trials are research programs conducted with patients to evaluate a new medical treatment, drug, or device. Clinical studies help bridge research and patient care through the evaluation of therapies, drugs and diagnostic tools and can even lead to medical breakthroughs. Both patients and medical researchers benefit from clinical trials.  [...]


Why Join the MPN Patient Registry?

There is a myriad of reasons to join but perhaps the single overall reason is this: knowing that your experience, combined with other patient data, can make a significant difference to the research community!  [...]


"Cancer is a thief"

Some may wonder what drives someone to become a Cancer researcher. In this video titled "Cancer is a thief" Dr. Ruben Mesa speaks movingly of his personal and professional motivations as a Cancer Center Director, renowned MPN researcher and human being who has experienced personal loss. Thank you Dr. Mesa for sharing your personal story, and for your work on behalf of those living with the rare blood cancers myeloproliferative neoplasms.  [...]


How to Identify Myeloproliferative Neoplasms

Some people with MPNs have no symptoms at diagnosis and the symptoms can depend on the type of MPN the patient has. Several symptoms, such as itching, fatigue and difficulty sleeping, are shared by all three classic MPNs—Primary Myelofibrosis (MF), Essential Thrombocythemia (ET) and Polycythemia Vera (PV). [...]


Let the FDA know about your experience living with PV, ET or MF!

You may have heard that MPNRF, along with fellow MPN advocates, is holding an externally-led Patient Focused Drug Development meeting with the FDA this September. If you are living with PV, ET or MF we are making sure your voice counts and is heard by the FDA. One of the means of doing this is collecting feedback via a quick phone survey with two questions: [...]


Rare Disease Advocacy Summer

Summer is here and Rare Across America has a unique opportunity to connect Members of Congress with their constituents who are living with a rare disease such as Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis. Their program sets up meetings with advocates and Members of Congress or their staffers for a discussion on something YOU know well: what it is like to live with an MPN and what Congress could possibly do to help.  [...]


MPNRF's Executive Director Discusses the Interferon Initiative

The MPN Research Foundation has invested more in Interferon research in the past few years through our MPN Interferon Initiative, a global collaboration among researchers and patient advocacy organizations. Interferon is a drug that has been on the market for decades. It was developed to treat viral infections like hepatitis B, but the medical community has also found uses for it in the treatment of cancer, including myeloproliferative neoplasms (MPNs). [...]

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