Patient Resources
We have compiled some of the best online resources for information about polycythemia vera, essential thrombocythemia and primary myelofibrosis. Finding a hematologist, accessing primary medical research reports or gaining more information on MPNs is available through the links below:
- The American Society of Hematology: Find a Hematologist
- Aplastic Anemia & MDS International Foundation
- The Bone Marrow Foundation
- CancerCare Inc.
- Cancer Research & Treatment Fund
- Cancer Support Community
- The Leukemia & Lymphoma Society
- The Mastocytosis Society
- MPD Chat
- MPD Voice
- MPN-RC (MPN Research Consortium)
- MPD Stichting - a Netherlands MPN organization
- MPN Canada
- MPN Education Foundation (formerly CMPD)
- MPN Forum
- MPN Mate (Australia)
- MPN Quarterly Journal
- National Marrow Donor Program
- NORD (National Organization for Rare Diseases)
- Patient Power
- PV Reporter
If you know of an organization that should be on this list but is not please send an email to communications@mpnrf.org.
