MPNRF Advocacy and Policy Contributions
We continue to talk to the FDA about topics related to MPN including end points, drug availability, new therapies and more.
Assisted Be The Match / American Society for Blood and Marrow Transplantation in their efforts to extend Medicare coverage to stem cell transplants for people with Myelofibrosis. Click here to read CMS' decision memo. January 2016
Supported the petition to lower the cost of drugs. August 2015
Patient volunteers of MPNRF participated in the OVAC Lobby Day June 2015