MPNRF Policy Advocacy Contributions

Signed on to letter requesting updates to the oversight framework for diagnostic tests, which would provide better consistency between labs in how patients are tested. January 2017

Assisted Be The Match / American Society for Blood and Marrow Transplantation in their efforts to extend Medicare coverage to stem cell transplants for people with Myelofibrosis. Click here to read CMS' decision memo. January 2016

Supported the petition to lower the cost of drugs. August 2015

Patient volunteers of MPNRF participated in the OVAC Lobby Day June 2015

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