Some things you should know about participating in a MPN clinical trial
It is important to meet with your hematologist to decide whether a MPD clinical trial exists that is appropriate for your stage of disease, and whether the logistics of participation with that specific trial works for you.
All MPN clinical trials have guidelines about who can participate. These Inclusion / Exclusion criteria vary for each trial, and are based on factors such as age, gender, the type and stage of a disease, and other medical conditions. Your hematologist can help you determine whether you are qualified for the study.
The process of Informed Consent occurs before during and after participation in a clinical trial. Study details (including risks and potential benefits) are explained by doctors and nurses and are also provided in writing. If your native language is not English translations are available.
As you are taking this step be prepared to be actively involved in the process. Jot down any questions you have and visit the clinic or investigation site prepared to take notes. Feel free to bring a tape recorder with you.
There could be costs involved which may or may not be covered by your insurance. Be sure to check with your doctor, the researchers and your insurance when considering the financial ramifications.