Finding Financial Support for your PV, ET or MF
MPN patients can face financial hardships in addition to, or because of their diagnosis of ET, PV or MF. From the impact of having less energy to work full time, to wanting or needing to hire help with household tasks, to the high cost of copays or insurance, it can have a great financial toll on a person living with an MPN. While the MPN Research Foundation does not have a program to assist with expenses, there are several organizations linked below that can help patients cover the costs of treatment.
The Leukemia Lymphoma Society (LLS) offers assistance to patients with blood cancers, including patients with myeloproliferative disorders. They make available Financial Aid for patients in active treatment, Co-Pay assistance, Education, Family Support Groups. Applications are available in English and Spanish.
The Patient Advocate Network (PAN) Foundation offers co-pay assistance for patients who need it. Jakafi is one of the medications they are offering assistance with currently. For more information or to apply visit their site.
Chronic Disease Fund is an independent non-profit that provides financial assistance to underinsured patients diagnosed with chronic or life-altering disease that requires the use of specialty therapeutics. Of the MPNs, CDF provides assistance for myelofibrosis only. For more information on the application process, click here.
The Max Foundation is a non-profit organization that is dedicated to improving the lives of people with blood cancer and rare cancers. The Foundation helps people enroll in patient access programs, identifies paths for access to treatment, and advocates on their behalf, all the while caring for their emotional health. They also provide emergency financial assistance to patients in the form of grants. Click here for information on the Max Foundation's patient services.
CancerCare offers co-pay assistance for patients with Myeloproliferative Neoplasms. The fund is limited to patients with adjusted gross household income at or below 500% of the federal poverty level and insured through a federal health care insurance program such as Medicare, Medicaid or TRICARE that is covering a portion of the cost of the medication prescribed to treat the patient’s primary cancer. Some patients with private insurance could be considered if they live in a state that excludes beneficiaries from participating in a manufacturer drug assistance program.
Patient Access Network (PAN) Foundation - PAN Foundation may provide up to $7,500 in co pay assistance to patients with ET, PV and MF. Apply Online (Click Here) or call 1-866-316-PANF (7263)
Lazarex Foundation provides support for cancer patient who need help navigating clinical trial options or financial assistance to attend a clinical trial. Their patient navigator can help you find the right clinical trial and can help with the costs associated with participating in a clinical trial, including: transportation (airfare, gas, rental cars, taxi fare, parking/tolls), lodging (short- and long-term housing) and certain medical expenses not covered by insurance and necessary for clinical trial treatment.
Good Days Good Days provides financial support by covering prohibitively costly co-pays for those with life-altering conditions, allowing them to receive treatment without destroying their finances. We even offer, in some cases, additional financial assistance for health insurance premiums and treatment-related travel expenses.
Mercy Medical Angels provides FREE transportation nationwide to and from medical care for qualifying in-need individuals and their families.
Other Helpful Organizations - LLS is pleased to offer an extensive directory of national and international resources. These organizations can help with cancer-related issues like financial assistance. Click here to discover all that is offered.