MPNRF Blog

New MPN Quarterly Journal Launched by MPN Forum

Recently the MPN Forum launched a new quarterly journal focused on scientific medical advances. The idea behind the MPN Forum Quarterly Journal (MQJ) is to provide hematologists and scientists a professional forum to talk with other physicians and interested patients in plain English about diagnosis and treatment of myeloproliferative neoplasms. [...]

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MF Challenge Grants for 2013 Announced

Today I got to do one of my favorite tasks: call grantees to let them know they have been awarded funds for their research. For the second consecutive year, the MPN Research Foundation and the Leukemia & Lymphoma Society have collaborated to review and award research projects proposing new ideas of how to stop or reverse fibrosis. Winners of these one year concept grants focusing on fibrosis and myelofibrosis are: [...]

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MPN News From ASCO

The American Society of Clinical Oncologist just wrapped up its annual meeting in Chicago last week. The meeting brought together over 25,000 oncology professionals from all disciplines. Added to the fertile mix were drug companies, advocacy folks and journalists striving to understand what’s new in cancer research and treatment. [...]

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Benefit Concert for Trek for a Cure to Take Place June 15th

The Trek for a Cure is right around the corner, and to celebrate the effort and raise funds, there will be a benefit concert on June 15th in Woodland, CA featuring violinist Emily Wells. The proceeds will benefit research to find a cure for Myeloproliferative neoplasms (MPNs). Money raised will go to the MPN Research Foundation. Annette De Bow is living with the disease and has dedicated herself to raising money for this foundation. As part of her fundraising efforts, she will be hiking the Tahoe to Yosemite Trail for 3 weeks this summer! For more information see http://trekforacure.com and http://www.mpnresearchfoundation.org. [...]

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Gearing up for New Round of MF Challenge Grants

The applications for the second found of MF Challenge funding will be reviewed on Friday, May 31st in Chicago. In addition to members of the Foundation's Scientific Advisory Board, thought leaders from fibrosis will be joining the review panel as the proposals are judged. In addition to scientific merit, the applications will be evaluated based on innovation and likelihood of clinical translation. The proposals will be scored on an NIH scale. Following the meeting, the Leukemia & Lymphoma Society and MPN Research Foundation will jointly decide which projects can be funded during this cycle.  [...]

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Chicago MPN Roundtable Publishes First Article

We've mentioned before about our low-cost, high-quality project titled the MPN Chicago Roundtable. Basically, it is a group of clinicians and researchers representing some of the great Chicagoland hospitals who gather around the MPN Research Foundation conference table to discuss what they're working on individually and what they can do jointly to accelerate and improve treatment options for people living with PV, ET, and MF.  [...]

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MPN on the Web

Lina, a young woman living with Essential Thrombocythemia, blogs about changing her medication and dealing with migraines: http://linampn.wordpress.com/2013/05/11/an-overdue-update/#more-202

MPN Forum is talking about the "silent gene" http://mpnforum.com/the-silent-gene/ [...]

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Dr. Mesa on Late-Stage Trials in Myelofibrosis

Dr. Mesa recently filmed a video for OncLive in which he describes some Phase 3 clinical trials ongoing for Myelofibrosis.  [...]

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Bealers' Ride for a Cure

In 2001, we lost our Grandma to a Myeloproliferative Neoplasm (MPN), a rare form of blood cancer that had no effective form of treatment at the time. Nearly five years ago, our mom had a blood draw showing her platelet count was over 4 times higher than normal, and she has since been diagnosed with a similar form of blood cancer. [...]

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