Today is Rare Cancer Day!
The Big Day is Here, Rare Cancer Day.
The National Organization for Rare Disorders (NORD) developed a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be observed today, Oct 1 to highlight the challenges people living with rare cancers face and to unify individuals living with rare cancers for awareness & early diagnosis.
Today is rare cancer day
Are MPNs cancer?
MPNs: Are they cancer? Does it matter?
In 2008 The World Health Organization (WHO), a specialized agency of the United Nations concerned with international public health, reclassified Myeloproliferative Disorders (MPDs) as Myeloproliferative Neoplasms (MPNs). Neoplasms indicates the abnormal growth of cells. The change placed Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis officially into the category of "cancer". Does that change anything for the person living day-to-day? Not necessarily. But linking MPNs to the cancer world allows us to better understand broadly what is going on; the bodily overproduction of blood.
MPNs, however, are largely chronic cancers. People can live for many years with an MPN, which can be confusing to family and friends.
What does neoplasm mean?
The word "neoplasm" defines Essential Thrombocythemia (ET), Polycythemia Vera (PV), and Myelofibrosis (MF) more precisely than "disorder". Neoplasia (Greek for "new growth") means that the abnormal proliferation of cells - in our case, one or more lines of blood cells. Many kinds of neoplasia result in lumps or tumors, either benign or malignant. They are called neoplasms, too, and are a good deal more common than our blood cell neoplasms.
Finding Support after a cancer diagnosis
As a leader in MPN research and education, we know that a diagnosis of PV, ET or MF can be a confusing and emotional experience. Whether you’ve just been diagnosed, are experiencing new symptoms or want to take initiative to understand more about your MPN, here are 10 steps to take after an MPN diagnosis.