This September We're Putting Patients in the Driver's Seat

Last September, the U.S. House of representatives declared that September is Blood Cancer Awareness Month. In 2012 our focus was to help educate patients about the diseases and the resources available.

This year is all about YOU as patients and patient-supporters, and the role you can take in combatting PV, ET, and MF.

This month we'll be starting a conversation on ways you can educate yourself and Take Action, and consequently help raise awareness about MPNs.

Starting next week, look for weekly emails from us on different components of the MPN world. Hopefully you'll pass them on to your friends and family. MPNs affect almost 300,000 people across the U.S.

Follow along on Twitter and Facebook with the hashtag #mpnbcam throughout the month of September.

You as patients know what it is to live with an MPN, and you know what a cure would mean. Play a part in informing your community that though rare, MPNs are worthy of attention and action.

Get Involved: To participate in one of September's events and for resources click here

Join us September 17th for a Twitter Chat!

On Tuesday, September 17th we'll be hosting an #mpnbcam Tweet-Chat. Follow us at @MPN_RF then follow along with the #mpnbcam hashtag. The conversation starts at 7pm EST. Foundation chairman and PV patient Bob Rosen will be participating as will MPN blogger Lina. We hope to "tweet" you there!

Author: Woehrle, Michelle

Michelle Woehrle joined the MPN Research Foundation in 2007 after being inspired by their mission to fund research that will improve the lives of people living with the rare blood cancers PV, ET and MF. In 2015 she was promoted to Executive Director. She has assisted with the expansion of the grants program, grassroots initiatives to connect with more patients internationally and optimize operations for the Foundation.

About the Blog

Check back regularly for updates about what’s happening in the MPN community, from advocacy to research..



Get free, timely information on living with an MPN.