The Power of Patients (and an Increase in the Number of People With PV, ET, and MF)

Recently we shared the new prevalence data which put the number of people in the U.S. with PV, ET, and MF at nearly 300,000. That's a lot more people with MPN than we thought we were dealing with.

This got us thinking about what people with PV, MF, and ET have done to drive MPN research to a better place, if not quite where we need to be. We also wanted a graphic way to display the new numbers. To illustrate what we think of when we think of "the power of patients" we put together this infographic:

Author: Michelle Woehrle

Michelle Woehrle joined the MPN Research Foundation in 2007 after being inspired by their mission to fund research that will improve the lives of people living with the rare blood cancers PV, ET and MF. In 2015 she was promoted to Executive Director. She has assisted with the expansion of the grants program, grassroots initiatives to connect with more patients internationally and optimize operations for the Foundation.

About the Blog

Check back regularly for updates about what’s happening in the MPN community, from advocacy to research..



Get free, timely information on living with an MPN.