"I want to share my story and help others like myself living with MPN. MPN Research Foundation has been that source of community support for my family and I as we learn to deal with living with a disease on a daily basis."

Ruben Mesa discusses research and symposium

 

The MPN Research Foundation in collaboration with Patient Power have released a video of Dr. Ruben Mesa speaking about one of his current research projects. In 2011 Dr. Mesa was awarded a grant from the MPN Research Foundation to validate the MPN symptom assessment form for patients with Polycythemia Vera and Post-Polycythemia Vera Myelofibrosis.

The data they hope to collect with this project is particularly useful now that there are several drugs currently in clinical trial for the myeloproliferative neoplasms. Myeloproliferative neoplasms – polycythemia vera, essential thrombocythemia and myelofibrosis – are a rare group of blood cancers that can strike anyone at any time and for which there are no effective treatment options that work for everyone. 

In addition to discussing how his project might help MPN patients, Dr. Mesa also spoke about the upcoming Midwest MPN Patient Symposium taking place September 20th in Chicago. This event will bring patients and their families & friends together with leaders in the MPN field to discuss the latest on treatment options, bone marrow transplants and pregnancy. The list of speakers includes Dr. Ross Levine, Memorial Sloan-Kettering Cancer Center; Dr. Ruben Mesa, Mayo Clinic; Dr. David Snyder, City of Hope Cancer Center; Dr Laura Michaelis, Loyola University Medical Center, among others. 

Tickets for the Midwest MPN Patient Symposium are available through EventBrite at http://chicagompnsymp.eventbrite.com/. If you have any questions about the event contact Neesha Kharva with any questions at 312-683-7249 or nkharva@mpnresearchfoundation.org

To view this video in Spanish, click here

 

 

 

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