Myelofibrosis patient journey

This project, sponsored by Celgene Corporation, is available to Myelofibrosis patients who live in the European Union. The purpose of the research is to quantify the emotional and attitudinal MF patient journey across different points in time, focusing specifically on the emotions experienced, any practical impact of the condition and its symptoms, your attitudes towards HCPs and treatments and any information sources you have utilized.

The research will take the form of a 45-minute in-depth telephone interview with web assistance and should you qualify to take part you will be compensated for your time with an honorarium of £50. The research will be conducted in accordance with the MRS Guidelines, BHBIA Legal & Ethical Guidelines, the ABPI Code of Practice and Data Protection Legislation.

Any information you provide us with will be treated as confidential and you will remain anonymous unless you give your consent otherwise. You have the right to refuse to answer a question if you wish or withdraw from the research at any time.
The purpose of the research is to quantify the emotional and attitudinal MF patient journey across different points in time, focusing specifically on the emotions experienced, any practical impact of the condition and its symptoms, your attitudes towards HCPs and treatments and any information sources you have utilized. Specifically…

Emotions experienced across the patient journey
Practical impact of the condition and symptoms
Attitudes towards Healthcare Professionals (HCPs) and treatments
Information sources utilized and value of these sources

The research will take the form of [a 45-minute in-depth telephone interview with web assistance] and should you qualify to take part you will be compensated for your time with an honorarium of 50£. The research will be conducted in accordance with the MRS Guidelines, BHBIA Legal & Ethical Guidelines, the ABPI Code of Practice and Data Protection Legislation.