Myelofibrosis Patients Journey

This project, sponsored by Celgene Corporation, is available to Myelofibrosis patients who live in the European Union. The purpose of the research is to quantify the emotional and attitudinal MF patient journey across different points in time, focusing specifically on the emotions experienced, any practical impact of the condition and its symptoms, your attitudes towards HCPs and treatments and any information sources you have utilized.

The research will take the form of a 45-minute in-depth telephone interview with web assistance and should you qualify to take part you will be compensated for your time with an honorarium of £50. The research will be conducted in accordance with the MRS Guidelines, BHBIA Legal & Ethical Guidelines, the ABPI Code of Practice and Data Protection Legislation.

Any information you provide us with will be treated as confidential and you will remain anonymous unless you give your consent otherwise. You have the right to refuse to answer a question if you wish or withdraw from the research at any time.
The purpose of the research is to quantify the emotional and attitudinal MF patient journey across different points in time, focusing specifically on the emotions experienced, any practical impact of the condition and its symptoms, your attitudes towards HCPs and treatments and any information sources you have utilized. Specifically...

  • Emotions experienced across the patient journey
  • Practical impact of the condition and symptoms
  • Attitudes towards Healthcare Professionals (HCPs) and treatments
  • Information sources utilized and value of these sources

The research will take the form of [a 45-minute in-depth telephone interview with web assistance] and should you qualify to take part you will be compensated for your time with an honorarium of 50£. The research will be conducted in accordance with the MRS Guidelines, BHBIA Legal & Ethical Guidelines, the ABPI Code of Practice and Data Protection Legislation.

Any information you provide us with will be treated as confidential and you will remain anonymous unless you give your consent otherwise. You have the right to refuse to answer a question if you wish or withdraw from the research at any time.

If you want to be part of this research please click here to leave your details & someone will be in touch to discuss further.

Subscribe to updates to learn more about available MPN treatments.

Lorraine

Essential Thrombocythemia

Learn about Lorraine's ET diagnosis and her experience with different treatments.

Meet Lorraine

Take the steps you need to help change your prognosis.

x

NEVER MISS AN UPDATE

Get free, timely information on living with an MPN.

Subscribe