"With research there is hope"
On August 19, 2014, Julie Libon was diagnosed with Myelofibrosis. She learned that MF is a rare blood cancer that affects approximately 16,500 to 18,000 people in the United States with no cure and no treatments to slow down the progression of this disease.
After her diagnosis, she and her family felt compelled to act. They formed HikeMF, an organization that sponsors an annual hike with the sole purpose fund research on Myelofibrosis. The funds raised from the hike support the work of the MPN Research Foundation. On Saturday, May 30th they had their first annual hike at beautiful Moose Hill Wildlife Sanctuary. Over 125 people laced up their boots and joined the fun. After hiking for about 90 minutes on the Bluff Overlook Trail, the hikers had refreshments, a silent auction, and raffles in the main building. They raised over $19,000 and they expect to hit $20,000 soon. Not bad when their original goal was $10,000 and they expected about 25 people hiking.
If you're inspired by Julie's actions email Bill at firstname.lastname@example.org with your idea, big or small.
About the Blog
Check back regularly for updates about what’s happening in the MPN community, from advocacy to research..