Kamron Llyavi

Kamron-MF Age: 56 Myelofibrosis (MF)

 Kamron was loved by every one! He was such a warm person with a beautiful spirit.

To sum up what my brother Kamron meant to us in a few short paragraphs is impossible.   Anyone who knew Kamron knew how much he cared and loved life, family, friends and his beloved fiancée Mary.  He was a beautiful person inside and out.  He was born in Tehran and lived in Iran until he was 14 years old and went to England to continue his education.  After two years his father decided to bring him to the United States and he moved to Libertyville, Ill when he was only 16 years old.  He completed his high school diploma and earned a mechanical engineering degree.  He loved sports, played football, and earned a martial arts black belt which was the highest degree of competence in Karate. Later he decided to enter body building competition and he participated in many national games and competitions.  He enjoyed his routine daily exercise at his favorite gyms, riding his Harley Davidson motorcycle, and was a big fan of Elvis Presley and Stevie Ray Vaughan music.

 Kamron was loved by every one! He was such a warm person with a beautiful spirit.  He had amazing qualities and followed a very simple life style.  It did not take much to make him happy and he always followed the simple rule of “Positive attitude brings positive results”. He was technically and mechanically inclined and it was nothing that he could not fix.  Very versatile and always available to help out others; his family was so proud of him when he built a beautiful home on his own and with his own beautiful hands in the Chicago suburbs.

In August of 2013 he was diagnosed with Myelofibrosis.  The disease was controlled with several different drugs for two years, but his body stopped  responding to those drugs and the doctors suggested bone marrow transplant as the final solution to cure his disease.  I was a good match as a donor and the stem cell transplant was completed on Dec 4, 2015, but unfortunately the doctors released him only two weeks after the transplant and the infection and all the post-transplant complications took Kamron from us on January 9, 2016 at the age of 56.

My suggestion to any patients who is looking for bone marrow transplant as a cure for Myelofibrosis is to wisely choose the doctors and the hospitals for this very difficult and dangerous procedure.

Our dearest Kamron, may you rest in peace, we will always love you and deeply blessed for our time on earth together.  You will forever be in our heart.

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These represent first person accounts of real people living with Essential Thrombocythemia, Polycythemia Vera and Myelofibrosis. It does not represent the views or opinions of anyone associated with the MPN Research Foundation. Please consult your doctor before taking any action to manage your health.

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