"With an orphan disease, the support can be hard to find. I found that support at the MPN research foundation." - Juan Alderete, PV '06. On Hydroxurea/baby-aspirin and living a quality life! Photo credit: Marianne Williams

Find an MPN Specialist

If you or someone you know has been diagnosed with polycythemia vera, essential thrombocythemia or myelofibrosis – it is important to be seen by a doctor who has some experience in treating others with myeloproliferative neoplasms. Since these are so rare, it can be hard to find someone who has the experience you want. We've found the following to be the most useful references for finding an MPN specialist, either as a second opinion or if you've just been diagnosed:

The American Society of Hematology offers a convenient and helpful way to search for treatment facilities by region as well as by specialty (MPN being one of them). 

For a crowd-sourced list of MPN patients seen and recomended by other patients, MPN Forum indexes a list of patient-recommended hematologists who specialize in MPNs.


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Get free, timely information on living with an MPN.


Get free, timely information on living with an MPN.