"With an orphan disease, the support can be hard to find. I found that support at the MPN research foundation." - Juan Alderete, PV '06. On Hydroxurea/baby-aspirin and living a quality life! Photo credit: Marianne Williams

Find a Treatment Facility

If you or someone you know has been diagnosed with a myeloproliferative neoplasm (MPN) – particularly polycythemia vera, essential thrombocythemia or myelofibrosis – it is important to seek out a second opinion and/or find a doctor who specializes in MPNs to help determine appropriate treatment.

The American Society of Hematology offers a convenient and helpful way to search for treatment facilities by region as well as by specialty (MPN being one of them). 

We at the MPN Research Foundation know that finding the right doctor at the right time is essential to the care of myeloproliferative neoplasm patients. Getting the correct diagnosis is just the first step in learning how to manage these chronic blood cancers.  We recognize the need for information on where to find the most comprehensive care and where to go for the most up to date treatment options provided by physician-researchers who know the latest in MPN science. This is why the MPN Research Foundation has begun to compile criteria on which to evaluate MPN centers of excellence.  Please check back in with us as this process develops through 2012.

 

 

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