Empower and Inform

Looking for a way to help? 

For the best chances at finding a cure the MPN community must work together. It's up to the people affected by polycythemia vera, essential thrombocythemia and myelofibrosis to make sure that MPNs are not ignored by the research or medical community. The best thing you as an individual can do is to let people know that we are a community working towards finding a cure. 

Consider Raising funds for MPN research

The MPN Research Foundation has funded $9 million in MPN research, virtually all from patients. Whether it is a letter writing campaign, participating in a local walk or ride event, or a dinner party, people have found creative ways to raise funds. If you are inspired to help find a cure contact Bill at wcrowley@mpnresearchfoundation.org or 312-683-7226.

Talk to your doctor

One of the most important things you can do is sharing information with your doctor. Consider bringing them some brochures or extra newsletters next time you visit so that they can keep up with what's going on with research, advocacy and community events. 

Join the online discussion

Like us on Facebook, and share with your network while you keep up with the latest news and interact with people in their same situation:

 Facebook 

Also consider also joining us on Twitter. To see what's current in MPN news and to give us feedback on how we're doing find us here:

 Twitter  

Join or start a support group

We are prepared to help you get started or make your group successful. For more information contact Michelle at mwoehrle@mpnresearchfoundation.org or 312-683-7243.

Subscribe to updates to learn more about available MPN treatments.

Rob

Polycythemia Vera (PV)

Meet Rob

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