MPNRF's Patient Education Program

We believe an educated patient is an empowered patient. We connect those with MPN to resources that can help them manage their disease now and fight for better treatments and cures for the future. Here are some of the ways we help educate patients.

Produce free onine and print newsletter for patients.

Because we believe in the power of peer to peer support, we assist support group leaders with reaching out to patients, with help finding a speaker for their groups and by supplying materials as requested. 

Create materials that help MPN patients better understand PV, ET and MF, what its like to be a caregiver to someone with MPN, information on clinical trials and more. 

We collect and house patient stories.

We support global patient education by our participation in the MPN Advocates Network and serve on the steering committee for their Horizons meeting. 

We share global resources for patients so that wherever they are in their diagnosis or need for infomration or support, they can find the resources they need. 

 

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Vivienne

Polycythemia Vera (PV)

Meet Vivienne

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